Friends are gold and LRB rules.

Yesterday, I knew that my mood was not stable as it had been the day before. I would say I was hovering around the minus 4 ( remembering that hospital beckons at that level). I felt that I could not face even getting out of bed. Even the shower seemed like too much effort, and I am one of those people who needs to shower whenever I feel stressed or just plain tired. My skin itches and feels like I want to scratch it off... and only hot streaming water, or a seaside dip can make me feel clean and alive. BUt this seemed pointless yesteday.

I knew I had arranged to be at a friend's house to help her with some writing for her PhD, and to work on something of mine. But I had nothing I could work on with a partner, and really felt just plain lethargic. I also had NO money for petrol. Well I had $10 but this wouldn't do the trip (110 ks return) an always ashamed to tell people how broke I am.

The words of my son and another girlfriend always resonate in my ears when I am broke. You SHOULD put money aside when you have it and not be in this position. Budget better!

There is that word again.. the bloody SHOULD!

Tell me oh wise ones.... how do you prioritise the budget to meet the shoulds of saving? And here I will publically lay it out. I receive (note not earn!) $600 per fortnight from Centrelink for a Disability Payment. My medication alone is $10.40 per week, without vitamins or mineral supplements that also help my mood states (fish oil, multis, B complex, and flaxseed oil). Then there are the few meals... say $80 pw (which includes personal care items also).

Next priority is keeping the car paid... as without it I am marooned and cannot escape AT ALL. That's $215 per fortnight. Add fuel $60 per week.

Now what's left? Well there is that little extravagance called an Internet. $45 per fortnight, plus a mobile phone pre-paid $20 per week.

Then let's add that ridiculous move I made to borrow money from Cash Converters to get to and from Uni (and attend the PhD colloquium) just so I could feel self-esteem and a sense of belonging with my co-students and ex-colleagues. So at 24% interest for the whole huge $500 my payments are $50 per fortnight. What a waste... how could I be so outrageous and ridiculous! Yep, I SHOULD HAVE stayed at home, felt disconnected, unempowered, isolated and totally worthless.... of course.

That leaves the princely sum of $10.

Now would anyone like to work out how I pay the thing called a Funeral Plan... at $37 per fortnight, car insurance $26 per fortnight, family health insurance at $115 per fortnight, and that other ludicrous extravagance Chrisco at $40 per fortnight... just so the household can feel normal at Christmas with festive fare and no huge debts afterwards. Let's add to this a waste of money through my last mental meltdown... an $80 library fine, and an outstanding student loan of around $600.

I am going backwards without work. Yet with work, my study time is eroded and I do not finish. Without finishing the PhD there will be no work. Catch -22.

Is it any wonder my self-esteem and my mood swing lower when I am financially pressured? How can you attend to the SHOULDS and save when at these moments YOU ARE NEVER SURE THAT THERE WILL BE A TOMORROW, OR NEXT WEEK???

That is not an overstatement. I have promised myself that I will not give up and just call it quits but deep in my psyche I still doubt that I can in fact 'pull it off', face down the demons and actually live or simply survive.

Living to me entails all the joyous wonder of the emotions, the social life, the glamour of the theatre, music, art galleries and restaurants. My life on DSS is simply survival. It brings a paucity to the spirit. My soul is in pain without affording me the beauty of 'living' at present.

So my SHOULDS go out the window. My common sense just can't win out.

So I guess for those reading this without BMD, I am (like my son and some friends seem to think) a selfish, immature little wastrell full of self-inflicted drama.

Oh, how I wish my words could allow you to empathise... if not agree with my thoughts and actions.

Luckily for me yesterday there is one friend who can and does empathise.

I am so pleased she convinced me to humble myself and borrow $20 just to get to her. To shower, dress, drive the 50 ks and walk along the beach, feel the sun on my face and the sand between my toes. How can I capture in words the pleasure of stroking the heads of two magnificent dogs across a fence; animals that accept a stranger's touch... and thus reassure me that I am an inherently 'okay' person?

I was able to drive home with 1970s and 80s pop music returning me to a time when I felt valued and with the future stretching ahead with all its promise.

Although not jumping up the mood scale, I think today I am stable again. I know the hospital is there in the background... but only when I catch up on the bloody health insurance payments... so maybe December??

What are those lyrics again... LRB? Hang on Help Is On The Way?

Does MY LIFE have to be so hard?

What is it about me?

I know I suffer BMD but that can't be the ONLY reason my daily existence is such an emotional roller coaster. I seem to care TOO MUCH about everything ALL THE TIME.

Just let's examine my movement on the moo- scales over the past 48 hours. It would look visually, like a heart monitor screen whilst the heart is undergoing shocks from defibrillation! Up, down, massive ups, massive plummets and then dead straight.... before beginning the patterns again.

Why?

I was very happy with getting down to the business of writing my Exegesis finally. I have stopped procrastinating and am no longer going back to the safety net of 're-reading articles or book chapters'. I have closed the books and am getting out of my head everything that has stuck in the deep recesses of my brain over the last forty months. The Dr Rowena Wallace method of focused writing seems to be just what I need at this moment.

It seems productive and a step in the right direction; forward for a change. I feel that I have actually worked (intellectually) over this period and despite the obvious structural and stylistic omissions at this stage in the draft it is a reasonably strong base to work on in the coming days.

I have also been jotting journal notes on plot additions and deletions for my artefact and am really looking forward to giving this 100% of my attention in the next few weeks.

BUT.... (here comes the but...)

Everytime I begin to feel under control and even healthy... some voice from somewhere (outside my head) comes along to destabilise me.

My supervisor implied last Thursday that when I sat a seat apart from her on the couch I was trying to avoid her. Wrong!

I'm the bloody one who flew home from my holiday in Sydney just to catch up for a meeting about how stuck I actually was. She was the one too busy to fit me into her busy schedule... after all she needed to leave at a certain hour to ensure she could meet her family/mothering responsibilities. What about mine? Let alone the issue of how much I spent to fly down and return back again to Sydney! My money of course, never University funds.

She also had a go at me for wanting to attend an annual Conference where most of my networking occurs and where I just might have a hope of getting some respect from a future employer. This University Which Shall Not be Named...(my alma mater) will not touch me with a proverbial barge pole now that I have seen the insecurities and hidden agendas at play, keeping it disfunctional (at least at my home Campus).

My future at age 54 hangs on this stuff.

I am not privileged enough to have had a husband and supportive family to ensure that I did not need twenty years out of my academic career and subsistence on Welfare.

These were not bad choices or things I regret... just how the cards fell.

I am only pissed off NOW when people refuse to understand or empathise and put their own emotional and career needs first AT MY EXPENSE.

Hence I am angry and this takes so much energy.

I pay a heavy price for this anger. I turn the emotion inside as I cannot vent (apart from here days later), and I end up crying and self-sabotaging my academic (and health) progress.

Need to regain balance and stability... again.

To take my mind off things, I decide that I need to think of someone other than myself to gain some perspective.

So in a very positive frame of mind I take myself off to important academic "Show Cause" (for continuning to be enrolled in a Course of study) Hearings as the Student Consultative Network representative at a different Campus in a different Discipline... see how protective of myself I can actually be?

This was a great learning experience and opportunity to read character... that of the fellow academic panel members and the students presenting.

Without breaching any confidences or professional ethics let's just say that when faced with cultural pressures unknown to us Aussie-born students: wars, political instability in homelands, extreme poverty, employment victimisation, workplace inflexibility, illness and homeless insecurity... my little issues seem like proverbial mole hills.

It was a humbling experience. And a timely one wit a reminder that I need to re-focus and regroup emotionally.

Next, I have to reach out for some beauty somewhere; this time around the leafy Acland Street and bright shiny wet streets of St Kilda and her wintry sea.

Then, up again to normal scale... move on and write again. Good stuff....

Only to be brought crashing down again by a 'friend'/co-scholar. A return of a missed phone call sees me being asked to 'fix' some computer program issues THAT NEVER SHOULD HAVE ARISEN if this bloody person had listened in the training classes or re-read the notes. Nor would it be my problem if he had run the expert trainer herself PRIOR TO NOW....

...Why would anyone at this stage of a PhD completion have moved the main document several times, onto several machines and hard drives... I can understand having backups ... but changing the machine that holds the ACTUAL document and attached library files... geee how dumb?

The complete lack of understanding of I.T. by MOST academics is staggering. Why do they assume any computer or program can fix EBEKAC? (error between keyboard and chair!)

Jesus... how is this a problem needing MY TIME or energy?

Our scheduled meeting had been about agreeing on a final draft of a journal article (co-written, then re-written by me to meet referees concerns... which academically were quite startling in their response.... a complete lack of research rigour on the part of my co-author stating blatant factual errors)... not a joint let's problem solve YOUR PhD issues session. This self-centeredness is staggering... and INSULTING to me! This from the PhD candidate of the Year!!!

Now this colleague needs to be sure his second journal article flows and doesn't regurgitate this joint paper. (I too have a paper for final submission also).... yet the next scheduled meeting is to FIX COMPUTER PROGRAM ISSUES.... I think not!

And to fix his citation issues when these could be researched on our own library website or in the Australian Government Publication Stytle Guide 2010.... why me? I guess I am easier to blame when things go wrong than to actually do the blooody work oneself. NO WAY JOSE. Been there had that just last September/October with same individual, and hospitalised again in February by same issues with a trusted superior/employer and male PhD scholar...

Patterns repeating. Can I be strong and do/say what I must?

I am feeling used and abused again... Remember friendly fire?

So again what was to be a really productive writing day has dissintegrated over night with me getting angry, then keeping it inside, then lashing out on the keyboard again. So much for actual academic writing progress... I need to vent again.

This 'dear' scholar also inferred that I am responsible for my supervisors extreme stress and anger at 'my' lack of progress!!! How dare he. And if that is actually what she thinks... how dare she? Her stress is not my issue, nor should it be... that's what her job is and why she is paid at that level... deal with it. I am trying to deal with my stress at $11.80 or whatever an hour... and I am managing to inch forward and stay well.

GRRRRR angry again....or rather, still.

Just when my world seems about to totter right down towards hospitalisation yesterday, my 21 year old son decides to watch a bad movie on the TV with me last night. I can't say "No, too busy", as this request doesn't happen often and has actually been years in coming.

I am so glad I put the bloody PhD on hold for this. We have had an amazingly tough last ten years. He has had to deal with so much trauma, stress and crises for someone his age that I am proud of him actually having survived it.

He decided last night to finally reconnect with me, as a parent and trusted friend.

We were able to re-trace all our emotional injuries to each other and share the innermost fears and insecurities (both of us). The years of fights, assaults, deaths, illnesses, drug use, car crashes, legal problems, financial crises, gangs and guns are finally all out in the metaphorical cold hard light of day.

The pain is not gone but it can be dealt with at last.

My son confessed to not a day going by without some 'nightmare' haunting him for a moment or two or preventing him from sleeping. He understandably has emotionally disconnected (superfically) just to get through at present.

Who can blame him? I now understand where he is at... finally.

I would be in the same place myself.. and probably a worse place were I his age. I am so proud of this young man. He has had to grow up so hard and so fast.

For the first time in years I KNOW he will survive and I can begin to relax. I am so overcome with relief that this also needs capturing on paper/screen.

Now I can move on and roll the dice again for myself. This has been a major movement in my stability.

When people read this, perhaps they can see how my PhD may be the most visibly important thing in my life but really there has always been more important domestic issues that have sapped so much energy, emotional strength and will to succeed on my part.

I am proud of where I am now... for the first time in years.

And F.... anybody else's expectations.

I am going to stay well, keep a strong relationship with my son and finish what I have started in my own time... so everyone else can just deal with that.

Sorry guys... my turn.

The tears are flowing now.. but they are tears of release.

Rest and relaxation

Again the sun was beaming and I had promised myself yesterday, no matter how I felt, I would rise, shower and get moving. After sleeping through the alarm again today, I finally woke realising that with a hurried shower and phone booking I could make it to yoga.

I am so sick and tired of being sore and in pain I thought yoga could not make it any worse, and I definitely needed the relaxation excercises. Driving up to Mornington I began gnawing at my fingernails.

My anxiety levels are out of control.

Walking in to the hospital I did not feel my usual relief at arriving at my safe place. Sitting in the admission booth I felt nervy and uncomfortable. Of course the computer would go haywire and make the admission process tedious and sluggish. The printer refused to print my labels for my wrist band.

I began to feel that it wasn't meant to happen and that I should just turn around and go home, which made me angry that I had just spent my last twenty dollars on petrol for the return trip.

After trying to reassure the agitated booking clerk that I was okay with the delay, when I actually wasn't. I had to smile politely and head directly to the staircase to go towards the yoga session after the recalcitrant printer had spewed out enough labels for a seven week stay.

They were expecting me, thanks to the hurried phone call and had left one door ajar. The session had not begun and Felicity was arranging chairs, mats and blue cubes and straps. My curiousity was piqued. We had never used this equipment before. Felicity explained that today we would be working on lower backs and she hoped that it wouldn't be a problem for me. Again she reinforced that if any of us felt discomfort or pain she would adapt the stretches and poses.

My day began to look up after I realised that any discomfort was only temporary and after the breathing and relaxation had taken hold I suddenly had no pain! How good it felt to work the lower back and spine, loosening all the previously throbbing hurt places. I began to smile and my face totally relaxed.

It was a fantastic start to the day.

Add to this that two of the younger in-patients were women I had shared the ward with earlier this year, I felt instantly at ease. We enjoyed catching up and felt a solidarity that can only be experienced by women who know intuitively what it is like to be struggling to stay well. We then sat together with one of the nurse counsellors, Brigit, and had a long de-brief session, particularly about wellness in the outside world. I really miss these sessions on the days when I have to attend Lilydale for work meetings.

The contradiction that I feel is quite curious.

On the one hand I need to feel connected to my old workplace and alma mater, but on the other I am drawn to being with people who have 'walked in my shoes'. We are apart from the people in the outside world yet together we feel that we are the normal ones. I miss this sense of empathy and understanding, but I know I cannot rely on living in an artificial world where the 'real world' is held at bay and problems left outside.

It is just that I am tired of fighting for every moment of quietude, sanity, logic and stability. I am tired of some important and influential people thinking that over my three and a half years of PhD candidature I have been slack. Every 'normal' worker gets four weeks annual leave and a similar amount of sick leave. Do I? Have I?

In the last three years I have used only one week of my holidays for that purpose; the week I booked in 2007 for a brief stay in Portugal after my Madrid conference presentation. Yep, a holiday. The very one that was put on hold because I fell down the marble steps at the Conference venue.

That same holiday which had me attending the Hospital Principessa in Madrid, having xrays, and my archilles tendons encased in bandages and moon boots whilst I reclined on the bed in the Holiday Inn, drugged with anti-inflamatories and pain killers.

Hmm relaxing hoiliday, that's fore sure.

So the following two years worth of annual leave?

These weeks were spent hopsitalised battling clinical depression.

Yep, great holidays those, also.

I guess I did have one week off last July after lap-banding surgery... or was that only four days in Ballarat, in winter with me checking emails morning and night to ensure my boss had what she needed whilst attending a Conference in Paris.

Then again this year another hospitalisation, for the same reason, clinical depression. A great time of relaxation with me accessing the internet everyday formatting a difficult thesis for a colleague and friend, much to the cost of my own recovery.

Another one of my famous 'holidays'.

• When do all these medical certificates be seen as legitimate interruptions to my PhD candidature?
• Am I being delusional counting these times/weeks/months as normal candidature times?
• Am I mistaken to count them as annual leave?

The other mistake I have made and paid (am paying) a substantial price for doing, is thinking that any Conferences I have attended are actually holidays!

Yep, the single days before or after the Conferences that allowed me to see the beautiful and exciting cities that was hosting these events, may not actually constitute holidays.

I always underestimate the intensity of focus required for actively listening to presentations and papers for three or four days consecutively and ensuring that my notes are summarised clearly at night, just to ensure I have everything in a useful form, for use on my return and ongoing study.

What on earth made me think that simply going out to dinner with other delegrates meant that these were holidays?

Every dinner held times for spontaneity and laughter, but also insightful intellectual discussions. They are no different to workplace conversations and brainstorming... part of work!

Yep, again these were definitely holidays weren't they?

Is it any wonder I am mentally exhausted? I need a break.

Why should I be made feel guilty for not pushing myslef to complete my candidature by June, just because if I apply to extend my candudature period, I might end up hospitalised in November (because the Xmas period is often emotionally stressful and I am often at risk of mania in November)? Perhaps, I might fall into mania only because people in my workplace have bullied me so attrociously and emotionally drained me, used me and undervalued my skills throughout the year leading up to November?

So many people (academics) underestimate the time certain tasks take to do, and when paid in hourly rates the pressure is on me to finish these tasks no matter how long they take, rather than have me be paid for the hours expended.

The result is unrealistic expectations, undervaluing the actual work being done, lack of knowledge of professional dtp rather than typing,limitations of available software for the tasks, and many more constraints which sees me working many, many unpaid hours.

Of course I break down under the stress.

Anybody would.

Could it possibly be that by allowing myself a bit of slack, to focus on my wellbeing, I just might be able to avoid hospitalisation?

• Am I also not permitted to be like a normal person?
• Who says I need less of a holiday with quiet relaxation for myself than another worker who needs to spend quality time with partner and family when it suits their family timeframes?
• Why are my individual wellness needs of less importance than other people's holidays, people who do not battle chronic illness?
• Are ill/disabled workers less entitled to holidays because they have different needs?
• Should my productivity be gauged by how much time I have off (hospital or not) or should it be judged upon the abilities and competencies I demonstrate at work?
• Since when do workplaces have the legislative right to discriminate based upon a worker's mental illness?

This form of unreasonable reaction and lack of understanding and empathy ensures that as a worker I will fall victim to stress-related breakdowns.

This is an incidious form of workplace bullying.

I am tired of fighting for my rights.


I guess I need a holiday!